Some good news, a few days ago they took a bone marrow sample from Marion to check for LCH, there was one sample of loose cells, and another of a bone marrow core. The loose cells came back negative for LCH!
However, the skin was positive for LCH, and the liver and lymph nodes are enlarged to the touch, and may also be positive. So they are starting treatment today which consists of a very mild chemotherapy once a week for a year, and daily steroids every day for a month. So I suspect she'll be on the baseball team in no time.
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Marion Isabella Sumner
Marion was born 02/16/2009 at 33 weeks. She weighed 4 lbs 6 oz, and was over 18 inches long. She had a blueberry muffin rash from head to toe, and was diagnosed with LCH - Langerhans' cell histiocytosis
03/19/2009 - Marion passed away quietly in her parents arms. She had developed an infection, which with her weak immune system she was unable to fight off. We are devastated and broken. She was very well loved by many during her short time here.
03/19/2009 - Marion passed away quietly in her parents arms. She had developed an infection, which with her weak immune system she was unable to fight off. We are devastated and broken. She was very well loved by many during her short time here.
Forever sleeping angel
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